Brittany Munn, resides in Western NY, and happily married. She is a mother to three beautiful children: Noah (b. 2011), Elise (b. 2013) and Caleb (b. 2014). Her youngest child, Caleb, was diagnosed with Biliary Atresia and Stage Four Liver Disease in January 2015. He was transplanted at Children’s Hospital at Montefiore in March 2015, where his father was his living donor. In April 2023, they transferred their care to NYU Langone in order to follow their liver doctors, where she currently represents as a family advocate for SPLIT PFEP. She joined PFEP in 2018, and slowly started work in pediatric advocacy. In October 2023, she officially stepped into the role as Chair for PFEP. She has helped develop the SPLIT PFEP Caregiver Mentorship Program that Nemours, Michigan Med, and Wisconsin are helping pilot, with the hopes to expand in the near future to more SPLIT Centers. She also served as a Board Director for BARE Inc. (Biliary Atresia Research and Education), and she is a volunteer Public Speaker for her local OPO, ConnectLife, promoting Blood, Organ and Tissue donation within her community. She is an advocate for The STARZL Network. Brittany holds a Bachelor of Science degree in Business and Marketing from Buffalo State University, and has owned and operated her own photography business, Take Heart Studios, since 2017.

Neshea Harrison was born in San Diego, CA, and raised in Baton Rouge, Louisiana. She holds a Bachelors in Psychology and a Masters Degree in Organizational Leadership. She married her high school love Edward in 1995 and has 3 children. Edward is a Post Master of the USPS. Their two sons are in their 20s, and their daughter Blythe (b.2013), the old soul of their life, and their miracle. Blythe’s etiology for her diagnosis is unknown. Blythe was a liver transplant recipient at the age of 16 months at Rady Children’s Hospital in San Diego, CA from a deceased donor. Thanks to her gift of life, Blythe is the Youth Ambassador for the Liver Coalition and participates in youth groups at church. She is also a Girl Scout, plays volleyball and softball, archery, taekwondo, and loves basketball.

Being a part of SPLIT PFEP allows Neshea an opportunity to help those who are where she has been. She feels that this forum gives parents an opportunity to voice change where it matters most. She also feels that those who have experienced the obstacles are commonly the ones whom are more likely to make effect changes since they have lived through the situations.

Another fun fact about Neshea is that she has had the pleasure of caring for her 2 nieces, and is the caregiver to her uncle with a heart defibrillator. She has a seat on board for the Liver Coalition Committee, volunteers for Hospice, a member of Revelation L.A church and a member of Black Chaplains International Association. Neshea says, “I’m a warrior for Christ, a daughter, a sister, a wife, a mom, an aunt, a niece, a friend, I’m a breast cancer survivor, a Chaplain, spiritual advisor, a mentor,  a listener, an activist for people, and an individual who is determined to be there and do whatever is needed to help those in need. I love Jesus with ALL my soul because without HIM there would be no me, HE has been my foundation.”

Kate Mullen currently resides in New Hampshire with her husband, son Finn (b. 2016), and dog Ned. Kate is a Licensed Independent Clinical Social Worker and Registered Drama Therapist. She holds a Bachelor of Science from New School University, and a Masters of Social Work from New York University. She began her clinical work in New York City, first working in outpatient adolescent mental health, and then in community mental health offering individual and group counseling to children, adolescents, adults and families. In addition to therapeutic work, Kate is the director of a theater arts program called Triple Threat Theater Camp. By utilizing her theater background, she brings Broadway veterans to New Hampshire to share their knowledge each summer with youth ages 6-17. She has been an active member in the organ transplant community and advocate for live donors since her son Finn’s dual diagnosis of Biliary Atresia and Alpha One Antitrypsin Deficiency shortly after his birth. After dual listing, Finn received a live donor non-related liver transplant at New York Presbyterian Columbia Medical Center Morgan Stanley Children’s Hospital in the Spring of 2017.

Kate was asked to join SPLIT PFEP in the Spring of 2020. She has had the opportunity to attend two in-person conferences and grow her connections with other transplant families.

Kate, Finn and his donor Sarah were invited to share their living donor story on news programs such as ABC World News and The Today Show. Kate has written about Finn’s journey and shared it publicly through a Facebook page which has led to many connections with other transplant families.  Kate serves as a board member for BARE - Biliary Atresia Research and Education. She has assisted with the family day with the BARE Symposium in both Chicago and Palo Alto.

Stephanie Mullett is a mom to two kids, Emma (b.2012), and Bryce (b.2018). She is the Program Administrator for the Alagille Syndrome Alliance. Her son Bryce had a liver transplant in August 2018 at Children's Hospital of Colorado, where her husband was Bryce's living donor. Bryce and Stephanie both have Alagille Syndrome, which led to the need for his liver transplant.

She joined SPLIT PFEP in 2023 to engage deeper in the transplant community, share resources, and continue to advocate for the needs of transplant recipients and their families.

Vanessa Smith, happily married with 4 kids and 4 grandchildren, is a Client Service Advisor in the health benefits and life insurance industry, co-owner of JVS Landscaping and Contracting, as well as a living liver donor. She has worked in Accounting and Project Management in various industries such as clothing manufacturing, banking, hospital and college foundations, construction and aerospace. She donated to her son Rylie (b.2006), at SickKids in Toronto, Ontario, on July 4th, 2007 when he was 10 months old. Rylie's diagnosis was Pediatric Acute Liver Failure (PALF).

Vanessa joined SPLIT PFEP in 2017 to be a part of a Mentorship Program and ensuring that pediatric liver transplants recipients and their families always have a voice. She also enjoys learning about medical advancements and research in the global transplant community.

From a young age, Rylie, along with Vanessa, have been involved in numerous organ donation and transplantation awareness events and fundraisers. They were speakers for the Highschool Outreach Initiative (HSOI) presentations to grade 11/12 science students in Toronto/GTA about becoming organ donors, members of the Canadian Transplant Association (CTA), participants in the Canadian Transplant Games 2018 and the Winter World Transplant Games 2020. They are also volunteers with Simcoe/Muskoka Gift of Life Association and CTA Ontario Division. Vanessa has been a Family Voice, with the Starzl Network For Excellence since 2022, where Rylie has also joined as a Patient Voice.

Clair Verstegen, with her 3 children and husband live in Greenville, Wisconsin. She works as an operating room circulating Registered Nurse at a local hospital. Brielle (b.2015) was born with biliary atresia and was transplanted with a portion of her mom’s liver on April 20th, 2016 at 11 months old, at Children’s Wisconsin in Milwaukee. 

Clair joined SPLIT PFEP in 2024 to help lead the mentorship program at Children’s Wisconsin. She is looking forward to helping support new transplant families on similar journeys with their children.

Katy ter Weele, married in 2006, and mom to one son and two daughters. She is a nurse by training but currently works part-time as a Math Tutor and Substitute Teacher in a local elementary school. Her son received his liver at Johns Hopkins Hospital In Baltimore, from a deceased donor angel on January 16th, 2021. His diagnosis was Primary Sclerosing Cholangitis (PSC).

At the recommendation of Dr. Mogul, Katy joined SPLIT PFEP in 2021, to be a part of research and awareness efforts in the area of pediatric liver transplantation.

Katy advocates for the importance of exercise in physical and mental health recovery post-transplant. She has met with her State Senator to ensure the pediatric voice was valued while making changes to the organ transplantation system. She has also been a guest teacher in her area’s high school Biomedical Program to present on pediatric transplantation and organ donation. She and her family are involved with local efforts to spread awareness about the need for organ donation and they do an annual fundraiser to donate to pediatric liver disease research.