Caregiver Division (Leads- Brittany Munn, NYU Langone PFEP & Dana Mannino, Nemours NP)
Caregiver Connection Program
Offered under the umbrella of the Society of Pediatric Liver Transplantation, but run by PFEP.
Pediatric liver hospitals associated with SPLIT will have access to participate in the program.
Hospitals looking to join will be encouraged to have 1 or more PFEP representatives for their center to take part in the mentoring support.
The goal of this program is to bridge the gap between caregivers and their hospitals by helping connect newly diagnosed families with veteran families within the pediatric liver community, and help support the mental and emotional load pediatric liver transplantation brings to those closely affected.
Currently 8 Pediatric Liver Hospitals participating in SPLIT have teamed up together to bring more awareness, and better education to the Non-Direct Living Liver Donor option offered at many centers across the USA and Canada. Our team is working on partnering with a national media group to share the stories of multiple PFEP members who are Non-Direct donors to pediatric patients, and follow the journey from beginning to end for someone who decides to be a living liver donor. The goal is to air this piece for October - National Liver Disease Awareness Month.
International Awareness Collaboration
SPLIT PFEP is teaming up with The Fight for Life Club to help better educate families faced with liver transplant for their child within Mexico. PFEP is committed to creating literature and media clips to help aid the FFLC in raising awareness, and supporting families within the liver community. To learn more about the FFLC visit their website here: www.fightforlifeclub.org.mx